Ostomy NSW - stoma products and support for Ostomates
We are Colostomy UK. A UK based charity. We're here if you have questions, need support or just want to talk to someone who lives with a stoma. Her story prompted other ostomates to get in touch and share their Three years after surgery, Michelle met her current partner Chris at a. Our contact details, including a map and directions of our location. Netherlands , New Zealand, Norway, Sweden, United Kingdom, Belgium and Slovenia. Meet and Greet for Ostomy NSW members and guests will be held at the Club.
I would like to talk about how important the support is from family and friends when you are ill. I will base this on my personal journey. I had made some good friends in my thirteen years with company and one in particular always came to visit me at home, and also when I had various stays in hospital. He had come from Australia but was originally from Surrey near where I was born, so we had that in common and we got on really well, and I was glad of his friendship in those early days.
After about two years we unfortunately lost contact so I guess he went back to Oz to his wife and child. My office boss came to visit me at home and we still meet up from time to time. I call into the office for chats sometimes, as he only does a couple of days a week now since his retirement.
Those visits were very important to me as I was feeling very cut off from everything, and all I ever saw was the four walls of my house. It helped me get through those difficult times. I know this sounds mad, but sometimes it was nice to go into hospital, after the initial shock of being admitted of course, just to get out of the house! I always went into the same ward so I got to know the staff and made some good friends with a few of the patients.
One guy I met in particular has become a very good friend and we are still friends today. A lot of the time we seemed to be in hospital at the same time and always in the same ward, and when we were in separately we always visited each other!
We also have the same consultant who we both get along with well, as he is a very down to earth guy, as well as being one of the top gastro doctors in the south.
My family throughout my illness was essential to me.
Share your story about life with a stoma - Coloplast UK
My wife especially, who became my carer through all of this as, a lot of the time, I had to have help in the bathroom, getting in and out of bed, and getting dressed. This sounds pathetic, I know, but anyone with this illness will know how debilitating it can be. I am very lucky to have five wonderful children; although all grown up now, they were all my rock.
My youngest daughter, who has just finished college, was very good and looked after mum during the times I was in hospital, and even though she was studying hard and also leading her own life, she and her boyfriend always visited me in hospital. My two step daughters, who have been with me since they were very young and who I consider as my own and I am always dad to them, were also always there when I needed them, as they still are.
My son and eldest daughter also gave a lot of support and always came to see me when they could. My brother visited me often at home and in hospital and always kept a good supply of model railway model railway magazines coming my way! On the morning of my operation, my eldest stepdaughter took me into hospital along with my wife and youngest daughter.
They came up to the pre-operative suite with me but when it was time to go in there I wanted them to go as I think it would have got quite emotional for all of us, and I needed to keep it together before this daunting operation. My daughters stayed with my wife all day and ten hours later when I awoke from my operation, my wife and eldest step daughter were there as I came round.
All of them came into see me every day I was in there, and also my friend whom I met in hospital. On the day I came home my wife and daughter picked me up and took me home.
Just over a year on and she is still my rock, as I sometimes have bad days and suffer with debilitating joint pain. Just before I close, I would like to sayso goodbye for now and keep your chins up, dear readers. Leanne Hammond lives in Dublin, Ireland. She is a very fun girl who loves to take on new adventures. From the very beginning, I was an average year-old girl from Dublin. I was always very healthy throughout my whole life, loved nights out and having fun, however I started noticing changes in my bowel habits, cramping and also bleeding.
Eventually in at age 18 I attended my local doctor for a blood test and discovered I had a low iron count and low vitamin B12, which was an indication to an absorbing problem and, along with the my bowel symptoms I had, my doctor decided to send me for a colonoscopy and an endoscopy a camera down into my stomach. About 7 months later, I received my appointment for the hospital to have these procedures done the following week, so on 27th February aged 19 I had my colonoscopy and endoscopy.
They removed 20 of these polyps during my colonoscopy to biopsy in the lab. Within weeks I had met with a surgeon because surgery was the only answer to cure and remove these polyps as my bowel was carpeted with them and I was told it would only take one of these polyps to turn cancer before It would be too late, so we discussed surgery to remove my bowel and I found out I was going to need a temporary ileostomy. Can I eat the same food I eat now? So many questions ran through my head.
As the weeks passed and the anxiety was slowly worsening I realised; instead of worrying about the bad things I started looking at the good things and dealing with it in a positive way, as this surgery was going to save my life. I was back and forth to the hospital for different scans and then 3 months later my surgery was scheduled.
I went under an 8 hour surgery on 10th September to have a total colectomy which meant I had my full large bowel and rectum removed. I also have a J-Pouch formed using my small intestine which was left to heal inside, and this is the reason why I needed a temporary stoma.
On 14th September I was taken for a CT scan which showed I had a peristomal hernia and my small intestine had twisted which was the cause to my nausea and vomiting because it had stopped my output into my bag. Later that evening my surgeon made the decision to bring me down for emergency surgery.
From then on every day, I started improving in hospital and I was slowly back eating a light diet. I was discharged from hospital 10 days after but things got worse when I got home — I suffered with back pain which caused many problems as I found it difficult to walk for more than two weeks. I had a very bumpy recovery which was so terrifying. I saw no end to this pain and I started regretting ever having the surgery done in the first place. I adapted to emptying and changing my bag almost straight away, I wear the exact same clothes as I did before surgery and the bag is never noticeable!
I also eat and drink the same as I did before! I also hope to return to work in a few weeks. I hope to inspire other young people to believe that ostomies are not the end of the world and a lot more people have them than you realise.
Ken is retired and enjoys running, golf and gardening, as well as repairing IT equipment. He was diagnosed with ulcerative colitis in and had keyhole surgery to remove his bowel, leaving him with an ileostomy. Here, he talks about techniques and accessories that have helped him to look after his skin. I was careful to apply barrier cream and anything that was recommended to assist in the care of that area of skin. My skin was also very sore and patchy especially close to my stoma.
On changing from a one piece bag to a two piece system I determined to start my regime again from scratch and see if I could establish the reason for the problems I was experiencing.
Living with a stoma
A good quality adhesive remover used copiously was always part of a careful removal of the baseplate. The emphasis being to be as gentle as possible to my skin by supporting it as the adhesive gave way. On the occasion when that happens now I can usually put it down to my mistake.
I generally had put this down to inadequate hydration of my skin for whatever reason. I find that when I do this, and also use a moisturiser on the effected parts, my skin returns to normal. I also take a good quality omega3 fish oil capsule daily. I find it difficult to consume that amount of water in a day. I do drink a fair amount of tea so I have been drinking organic decaf tea for a couple of years.
The majority of decaf tea has the caffeine removed chemically which leaves residues in the tea which in turn upset my system. By using hard to find Clipper organic decaf tea that problem is avoided as the process is water based. I can then drink copious amounts of tea and count it towards my water quota per day. There are vitamin supplements of vitals C and E which are meant to work so I will have to try those or just accept this craggy old face as it is.
Travelling abroad Before you travel abroad, check your travel insurance policy to see how your condition and circumstances are covered while away.
In warmer climates, you may perspire more and thus need to change your pouch more frequently. Always make sure your skin is completely dry before applying a new pouch ensure a good secure fit.
'Active Ostomates' chair yoga reaches Hampshire - Colostomy UK
If necessary, use a hairdryer to dry the area — but be careful not to have the heat setting too hot. You may also be at increased risk of diarrhoea or dehydration. Drink plenty of water, and take rehydration sachets and medicine to treat diarrhoea, just in case. Once you are on holiday, remember that you can still do all of the same activities you did before, and relax and enjoy yourself.
- Active Ostomates
- We are a UK charity that supports and empowers people with a stoma
- Testimonials and stories from those that have been through stoma surgery
But when and how you do this really depends on how you feel, the type of work you do, and the stoma operation you had. Talk to your employer and discuss your options as soon as possible. It may be possible to return to work part-time; this could be particularly helpful when you first go back as you may still feel tired and need time to get used to new routines. Try it out A few weeks before you go back, do a few trial runs where you dress and plan your day as if you were going to work.